Monday, April 22, 2013


So when I got discharged from Duke last Sunday, the doctor who discharged me told me that they were setting up an appointment for me at the headache clinic, and it would be in early May that I could get in because it would be easier to get me an appointment since the neurology team had seen and treated me in the hospital.

They never called me last week like they were supposed to, so I spent half an hour on the phone today trying to figure out when my appointment was.

Imagine my surprise when they told me that my appointment was scheduled for June 18th.


One of the "joys" of going to basically the best hospital in the world is that they come with ridiculous waiting lists.  That is literally the first available appointment that they had.  And then I had to move it to the 19th because the 18th appointment was at 10:45, and I knew Mom would hate making that long of a drive that early, and they didn't have anything later that day.

So June 19.  That's 58 days until I get to see a specialist who might actually have some clue as to how to help my pain.

In the meantime, I scheduled a clinic appointment with one of the doctors I saw in the hospital because it doesn't seem like this new medication combination is helping at all for May 8.  Maybe he'll give me some pain pills or something because this pain is getting more intense by the day.

I'm frustrated, not gonna lie.  Right now, all I'm trying to do is keep my mind focused on the truth:  God is still good, God is still in control, He's gonna work this out for my good and His glory.  Leaning into Christ is the only thing that's gonna get me through this.  I don't have anything else at this point.

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