You know your life is kind of sad when you are as excited to go to the doctor as I was to go to the neurosurgeon on Thursday.
Too bad nothing good really came of it.
The doc was irritated because my neurologist sent me to him before doing all the tests he could have done, and I didn't have all my records from Duke and my brain surgeries, because no one told me I needed to bring them. He needs to run a bunch of other tests plus get all the records from Duke before he can tell me anything. So I have to a) get Duke to fax him all my records, b) get Duke to mail me CDs of all my scans to bring to my next appointment, c) get a bunch of labs, d) get a shunt series (X-rays), and e) get checked out by a neuro-ophthamologist. I talked to my old neurosurgeon from Duke's office yesterday, and they emailed me a release form that I can print out, fill out, scan, and email back to them, so I've got to talk to my uncle tomorrow since he's bringing me meds anyway. I'll get the labs done next Monday the 25th at my primary care. The shunt series can be done as a walk-in next time I go down to see this doc. They sent the referral to the neuro-ophthamologist who will call me to make an appointment. Hopefully the fact that I don't have vision insurance won''t prevent me from being seen. Also, usually when a shunt is infected, there is redness around it, but there's not around mine, so that's a good sign; however, he's very concerned about how sensitive I am to touch on my head, so he "hopes it comes together quickly," because it's not a good sign that I can't stand for my head to be touched. If the labs and X-rays don't show anything, all he can do is tap my shunt, which he really doesn't want to do because of my history of meningitis (Duke docs are pretty sure I got meningitis thanks to them tapping my shunt when the valve broke). Meanwhile, I get to spend another month or so in constant, unexplainable, excruciating pain.
Yesterday, Mom and Mommom left for 10 days in Pennsylvania. I was going to go, but decided that I'd rather have 10 days to myself and hopefully be able to get some job applications done. (So far, that's been a no go thanks to my freakin head.) The silence is weird, but refreshing. My aunt and uncle are leaving on Tuesday, so then it'll just be me and Chelsea in town, but I don't even have to see or talk to her every day, so it's no big deal.
Today, I woke up feeling pretty good (well, pretty good for me, anyway) so I thought that after my afternoon of sports, I'd be good to get some work done. Ha! Guess again. As soon as the last game I cared about was over, my head felt so explosively painful I couldn't do anything but sleep. I can still barely turn my head. On the upside, the Wolfpack won, so there's something, I guess.
Sigh. I'm so tired of feeling like shit.
Here's hoping tomorrow is better. Hope for the best, prepare for the worst. Story of my life.